To mark World Ostomy Day 2018, I’ve decided to write about things my ostomy didn’t change about me or my life. It would probably be easier to write about things my ostomy DID change about me. It would certainly be a shorter list! Why? Apart from a few obvious things, not much has changed. I’m still me! A slightly rejigged version of me where my body functions a tad differently to some, but otherwise, still me. I would even say a new and improved version of me!
Take a minute to stop and smell the stomas …
Not literally of course (because we all know how that could end up!!). I’m talking figuratively.
This post marks my 4-year stomaversary. 4 years with an ostomy. Where on earth did that time go?! I know exactly where it went! To getting back to living life! Read More »
This post was originally written for Eakin’s A Bigger Life
Seriously? I don’t think I would have gotten through my surgery without mine! Stomal therapy nurses play a pivotal role in our lives pre and post-surgery. Most of us lucky enough to have a stoma nurse (and it amazes me that anyone is allowed to go through ostomy surgery without one) know they are amazing human beings. Ostomates have a special kind of relationship with their stoma nurse, and I might be a bit biased, but of course I think my stoma nurse Kerrin is the best!!
This post was original written for Eakin’s A Bigger Life: http://abiggerlife.com/food-blockage/
I am very fortunate that in my almost 4 years of having my ostomy, I am yet to have a blockage. That said, I’ve diligently read up on signs to watch out for and what to do just in case I do ever get one! Read More »
Anyone who knows me personally knows that I’m far from being a girly girl! My beauty routine is virtually non-existent and the extent of my makeup repertoire is a bit of mascara and some tinted moisturiser. Occasionally I might straighten my hair. In other words, I’m quite lazy and nonchalant when it comes to dressing and dolling myself up. I prefer the natural look!
Apart from taking photos flashing my bag in public, I certainly don’t consider myself a poser or exhibitionist, and I don’t like being the centre of attention!! When I saw the post on Facebook looking for volunteers aged from 30-40 for an Ostomy underwear shoot, even I was surprised I put my hand up!!! I was new to London, keen on trying new things and making new friends, so I thought, why not!!
This post was originally written for Eakin’s “A Bigger Life”: http://abiggerlife.com/preparing-for-surgery-packing-and-shopping-lists/
If your surgery is planned and you have time to pack your own hospital bag, there are a few things I would include in my must pack list, as well as a few must haves for when you get home following the early days out of hospital.
You will have a lot of time on your hands, and whilst you will probably be sleeping a fair bit, I made sure I had plenty of other things to keep me busy (there is only so much day time TV you can watch before going mad!!).
Stomaversary, Bagaversary, No Colonaversary, whatever you like to call it, today marks 3 years with my stoma!
Technically my first ostomy was formed 3 years AND 5 months ago. It started as a loop ileostomy, so I consider the first 5 months: “the dating phase”! The real deal happened on 24 September 2013. That’s when I got my new stoma (and got rid of some other bits!) and we became committed (for life). This got me to thinking about the parallels between our relationships with our stomas and human relationships. There are many similarities, but also some polar opposites.
Like all relationships, our relationships with our stomas are individual and each very different. Some will be better (or at least ‘different’) than others. This is my experience. This is about MY relationship with MY stoma and the path we have taken as I reflect on my 3rd Stomaversary.
This post was originally written for Eakin’s “A Bigger Life”: http://abiggerlife.com/preparing-surgery/
I remember seeing my surgeon and stoma nurse prior to surgery with a notebook full of questions I wanted answered! If you have any questions, concerns or worries – make sure you ASK! It’s one of the best ways to prepare yourself (especially mentally) for surgery. I had several pre-op visits with my surgeon and stoma nurse and I took the opportunity to ask about everything that was on my mind! Read More »
I’m not sure what made me decide to venture into ostomy underwear land! I was happy in my regular Bonds boy leg undies, and I’ve never really been into sexy lingerie. My Bonds were getting a little worse for wear, so I figured why not branch out and try something new!?
I ordered a couple of pairs of 4me Underwear online, which was a super easy process via their website. The lovely Michelle (designer and brains behind 4me and an ostomate herself) threw in a few extra pairs for me to try on the house 🙂
I’ve been wearing 4MeUnderwear on a daily basis for several months now, and I honestly wouldn’t go back! I only wish I’d made the leap and tried them sooner! Here’s my review!
Read More »
The final post for Ostomy Orientation Week (or month as it turned out!) goes a bit deeper and personal, pondering some of the more difficult questions and feelings around life with an ostomy. Telling people you have an ostomy, the best and hardest things about life with an ostomy, and the big one, do you have a better quality of life since having surgery?
Thank you for following along and joining in. I hope you’ve learnt as much and found these posts as valuable as I have!
There is just so much to talk about when it comes to stomas! This part of Ostomy O-Week talks about stomas – naming them, size, prolapses and if you can feel your stoma. Please shout out if you have any other questions.
Part 4 of Ostomy Orientation Week is about Daily life with an Ostomy – Showering, sleeping, what to wear, exercise, smell and sex with a stoma.
This is Part 3 of Ostomy Orientation Week – What goes in must come out! It’s all about eating and pooping with an ostomy. Output consistency, foods to help thicken output, blockages, gas and staying hydrated.
This is Part 2 of Ostomy Orientation Week – it’s all about BAGS! Changing and emptying your appliance: where and how often you change your bag, what type of bag and other stoma supplies you use, peristomal skin, how frequently you empty your bag, your emptying technique and ostomy leaks.
This is Part 1 of Ostomy Orientation Week – all to do with surgery, hospitals, possible complications, the recovery period and more! Read More »
“An Orientation week for Ostomates”. What to Expect When You’re Expecting a stoma!
I recently held Ostomy O-Week on the Stoma-licious Facebook page and Instagram account. What started as a week ended up being closer to a MONTH! There are just so many topics to discuss when it comes to OSTOMIES! I still haven’t covered anywhere near all of them!
I’ve decided to publish a 4-part series of all the Ostomy O-Week posts here! Read More »
Okay, so this device does look a bit strange! I’ve had comments of intrigue and confusion after posting photos trying it out. I’ve used it 5 or 6 times now, so it’s time I elaborated and put an end to the mystery of the Stomydo!
First of all, a bit of background…. Stomydo is a company based in the Netherlands, and the designers behind the Stomydo stomashower and wafer heater. They approached me after seeing a video I shared of changing my ileostomy bag asking if I’d be interested in trying it and sharing my experience. I had lots of questions at first too, unsure exactly what it was for and why I’d need such a thing! I was still undecided, but figured it was worth a try!
I am by no means a ‘fashionista’, and definitely not the first person I would turn to for style tips or clothing advice!! You wouldn’t see the outfits I wear on the runways in Milan, but I do have almost 3 years’ experience dressing with an ostomy, and over the years have picked up some practical tips and ideas on dressing with an ostomy.Read More »